FAQ

First and foremost, we provide our members with a supportive community, where lifelong friendships can be formed between dieters and their parents.

Secondly, membership has more financial advantages, since

·       in the form of a product subsidy, the dieter will get the membership fee back within a month or two,

·       you can participate in association events,

·       dieters can camp for free - and their families with a discount - in our association camps, where both the normal and diet menus are provided,

·       student dieters in financial support, so-called they can receive a scholarship program to continue their studies,

·       they get free access to the current issue of PKU Magazine, in which we bring up-to-date information from the world of PKU.

Our association is also open to other congenital low-protein dieters, so our members also include people with galactosemia, tyrosinemia, MSUD and other rare metabolic disorders. We ask them to attach a certificate from a specialist doctor about the existing diagnosis to the support data sheet.

Family members, grandparents, distant relatives and friends can also support the Association, the so-called by paying a sponsor's fee, which is HUF 5,000/year. The supporter of the association is not entitled to participate in the complaint system or to purchase discounted products. Our supporters can only participate in camps and other programs and events organized by the association.

You can see the entry conditions and current membership fees under the PKU/Membership information menu item.

The professional committee of the Hungarian PKU Association consists of the following persons:

Dr. János Bókay – pediatrician, attending physician of the PKU care center – No. I Children's Clinic, Budapest

Dr. Zsidegh Petra - pediatrician, attending physician - I. no. Children's Clinic, Budapest

Dr. Péter Reissmann - internist, endocrinologist, attending physician of the adult PKU care center - SE I. no. Internal Medicine, Budapest

Dr. Gábor Rácz - pediatrician, attending physician of the PKU care center - Gyermeklinika, Szeged

Erika Kiss - senior dietician - I. no. Children's Clinic, Budapest

Erika Simon - dietician

Eszter Gyüre – dietician – PKU Care Center SZTE-SZAKK, Szeged

We provide dietary product support for all dieters based on their age. This is an annual fixed amount that can be paid to us on one (maximum two) occasions. An invoice for low-protein products purchased in stores, webshops, and specialty stores must be requested in the name of our diet member, and sent to the e-mail address (or postal address) shown on the contact tab of the association and max. After 1 month of approval, the amount of the purchase will be transferred to the specified bank account! As age advances - the amount of food also increases, and the amount of support increases. For example, for an adult, this amount is currently five times the membership fee!

· with one percent of your personal income tax ("SZJA 1%"), our tax number:
19662594-1-42

· with voluntary work

· with financial support, the amount is transferred to the association's bank account - in the case of economic entities, we issue a tax certificate upon request

Under the menu item Information/Useful addresses, information, the list of online stores and the list of stores offering special low-protein products is constantly updated.

+ tip: Great, tested diet recipes can be found in Erika Kiss's blog, and in the PKU Maestro's and Csodabogár's Recipe Library menus! Availability in the Sponsors menu item.