📢 EuropaBio 2025 Patient BioForum: Towards a patient-centred healthcare system
On 13 May 2025, Tobias Hagedorn represented both the ESPKU at the EuropaBio 2025 Patient BioForum. The topic: ‘From discovery to access: Towards a patient-centric health European ecosystem’.
MEP Dr Kulja András and MEP Stine Bosse emphasised the need to put patients at the heart of EU healthcare legislation. Experts from the biotech industry, the EU Commission, and patient representatives stressed that health must remain a top EU priority ⚕️. In view of disruptive US policies, lessons from the coronavirus pandemic, and multiple international crises, Europe must evolve into a stronger biotech hub 🔬 — for the benefit of patients and to counter growing Euroscepticism 🇪🇺.
The concept of ‘unmet medical need’ was repeatedly highlighted as a key driver for strategic investments 💡.
Rosa Castro (EURORDIS-Rare Diseases Europe) summarised: 'It is about faster and fairer access to innovative medicines for patients with suboptimal or no treatment options.' ⏱️⚖️
Initiatives like the European Pharmaceutical Legislation, the Critical Medicines Act, and the Biotech Act present real opportunities to make this a reality. But it's crucial that these measures are well-coordinated and avoid over-regulation ⚖️⚠️.
Patient representatives also called for a European Action Plan for Rare Diseases and warned against reducing patient participation in the EMA 🗣️. Patients must remain co-creators of the healthcare landscape.
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